‘Knowledge is power’: A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology

Emily Duncanson, Kathryn Dansie, Talia Gutman, Allison Tong, Martin Howell, Shilpanjali Jesudason, Donna Reidlinger, Amber Williamson, Nicole Scholes-Robertson, Lisa Murphy, Carmel M Hawley, Jonathan C Craig, David W Johnson, Stephen McDonald

Research output: Contribution to journalArticle

Abstract

Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.

LanguageEnglish
JournalNephrology
DOIs
Publication statusPublished - 29 Jan 2019
Externally publishedYes

Keywords

  • conferences
  • congresses
  • consumer engagement
  • patient participation

ASJC Scopus subject areas

  • Nephrology

Cite this

Duncanson, Emily ; Dansie, Kathryn ; Gutman, Talia ; Tong, Allison ; Howell, Martin ; Jesudason, Shilpanjali ; Reidlinger, Donna ; Williamson, Amber ; Scholes-Robertson, Nicole ; Murphy, Lisa ; Hawley, Carmel M ; Craig, Jonathan C ; Johnson, David W ; McDonald, Stephen. / ‘Knowledge is power’ : A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology. In: Nephrology. 2019.
@article{8d6a593dce824f8b83dfb597f526455e,
title = "‘Knowledge is power’: A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology",
abstract = "Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.",
keywords = "conferences, congresses, consumer engagement, patient participation",
author = "Emily Duncanson and Kathryn Dansie and Talia Gutman and Allison Tong and Martin Howell and Shilpanjali Jesudason and Donna Reidlinger and Amber Williamson and Nicole Scholes-Robertson and Lisa Murphy and Hawley, {Carmel M} and Craig, {Jonathan C} and Johnson, {David W} and Stephen McDonald",
note = "{\circledC} 2019 Asian Pacific Society of Nephrology.",
year = "2019",
month = "1",
day = "29",
doi = "10.1111/nep.13570",
language = "English",
journal = "Nephrology",
issn = "1320-5358",
publisher = "Wiley-Blackwell",

}

‘Knowledge is power’ : A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology. / Duncanson, Emily; Dansie, Kathryn; Gutman, Talia; Tong, Allison; Howell, Martin; Jesudason, Shilpanjali; Reidlinger, Donna; Williamson, Amber; Scholes-Robertson, Nicole; Murphy, Lisa; Hawley, Carmel M; Craig, Jonathan C; Johnson, David W; McDonald, Stephen.

In: Nephrology, 29.01.2019.

Research output: Contribution to journalArticle

TY - JOUR

T1 - ‘Knowledge is power’

T2 - Nephrology

AU - Duncanson, Emily

AU - Dansie, Kathryn

AU - Gutman, Talia

AU - Tong, Allison

AU - Howell, Martin

AU - Jesudason, Shilpanjali

AU - Reidlinger, Donna

AU - Williamson, Amber

AU - Scholes-Robertson, Nicole

AU - Murphy, Lisa

AU - Hawley, Carmel M

AU - Craig, Jonathan C

AU - Johnson, David W

AU - McDonald, Stephen

N1 - © 2019 Asian Pacific Society of Nephrology.

PY - 2019/1/29

Y1 - 2019/1/29

N2 - Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.

AB - Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.

KW - conferences

KW - congresses

KW - consumer engagement

KW - patient participation

UR - http://www.scopus.com/inward/record.url?scp=85065441926&partnerID=8YFLogxK

U2 - 10.1111/nep.13570

DO - 10.1111/nep.13570

M3 - Article

JO - Nephrology

JF - Nephrology

SN - 1320-5358

ER -