Identification and Evaluation of Items for Vitreoretinal Diseases Quality of Life Item Banks

Mallika Prem Senthil, Eva K. Fenwick, Ecosse Lamoureux, Jyoti Khadka, Konrad Pesudovs

Research output: Contribution to journalArticle

Abstract

Purpose: We are developing item banks assessing the impact of retinal and vitreoretinal diseases (excluding age-related macular degeneration, diabetic retinopathy, and retinal detachment, covered elsewhere) on quality of life (QoL) for adults. This study outlines the first two phases of the multi-stage process: content development and item evaluation. Methods: We grouped retinal and vitreoretinal diseases into hereditary and acquired. Development of the item banks involved two phases: item identification and item evaluation. The items were extracted from three sources: (1) 17 pre-existing PRO instruments, (2) 4 qualitative studies and (3) 79 semi-structured interviews. Item evaluation involved three stages namely, binning (grouping) and winnowing (reduction), expert panel opinion and cognitive interviews. Results: The item identification phase yielded 1,217 items. After three sessions of binning and winnowing, items were reduced to a minimally representative set (n = 411) across nine QoL domains namely, activity limitation, emotional, social, health concerns, symptoms, economic, mobility, convenience, and coping. The hereditary group had a total of 345 items and the acquired group had a total of 257 items. After 23 cognitive interviews items were amended for hereditary diseases resulting in a final set of 345 items and 3 items were amended for acquired diseases, resulting in a final set of 254 items. Overall across nine domains 189 items were common to hereditary and acquired retinal and vitreoretinal diseases. Conclusion: As most of the items were unique to hereditary versus acquired retinal and vitreoretinal disease groups separate item banks are required to capture the QoL impacts for hereditary and acquired retinal and vitreoretinal diseases.

LanguageEnglish
Pages448-458
Number of pages11
JournalOphthalmic Epidemiology
Volume26
Issue number6
DOIs
Publication statusPublished - 2 Nov 2019

Keywords

  • Retinal disease
  • computerised adaptive testing
  • hereditary
  • item banks
  • patient-reported outcome instruments
  • quality of life
  • retina
  • vitreoretinal diseases

ASJC Scopus subject areas

  • Epidemiology
  • Ophthalmology

Cite this

Prem Senthil, Mallika ; Fenwick, Eva K. ; Lamoureux, Ecosse ; Khadka, Jyoti ; Pesudovs, Konrad. / Identification and Evaluation of Items for Vitreoretinal Diseases Quality of Life Item Banks. In: Ophthalmic Epidemiology. 2019 ; Vol. 26, No. 6. pp. 448-458.
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Identification and Evaluation of Items for Vitreoretinal Diseases Quality of Life Item Banks. / Prem Senthil, Mallika; Fenwick, Eva K.; Lamoureux, Ecosse; Khadka, Jyoti; Pesudovs, Konrad.

In: Ophthalmic Epidemiology, Vol. 26, No. 6, 02.11.2019, p. 448-458.

Research output: Contribution to journalArticle

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