Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia

Emily Duncanson, Paul N. Bennett, Andrea Viecelli, Kathryn Dansie, William Handke, Allison Tong, Suetonia Palmer, Shilpanjali Jesudason, Stephen P. McDonald, Rachael L. Morton

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)

Abstract

Introduction People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, utility and impacts are not well understood. Methods and analysis We describe a protocol for a qualitative study to evaluate the feasibility and acceptability of electronic-PROMs (e-PROMs) data capture and feedback in haemodialysis following the pilot Symptom monitoring WIth Feedback Trial (SWIFT). SWIFT involves linkage of e-PROMs data, including symptoms and health-related quality of life, to the Australia and New Zealand Dialysis and Transplant Registry with feedback to patients' treating nephrologists and nurse unit managers. Focus groups and semistructured interviews will be conducted with nephrologists (n=15), dialysis nurses (n=24) and patients receiving haemodialysis (n=24) from six dialysis units in Australia. Question topics will include the technical and clinical feasibility and acceptability of e-PROMs reporting and feedback (including the barriers and enablers to uptake) and perceived impact on patient care and outcomes. Transcripts will be analysed thematically and guided by Normalisation Process Theory. Ethics and dissemination Ethics approval was obtained from the relevant hospital Human Research Ethics Committees (HREC/18/CALHN/481; HREC/MML/54599). The findings from the SWIFT pilot and qualitative evaluation will inform the implementation of the SWIFT main trial, and more broadly, the use of e-PROMs in clinical settings and registries. Trial registration number ANZCTRN12618001976279.

Original languageEnglish
Article numbere039014
JournalBMJ open
Volume10
Issue number11
DOIs
Publication statusPublished or Issued - 6 Nov 2020

Keywords

  • adult nephrology
  • chronic renal failure
  • dialysis
  • nephrology
  • qualitative research

ASJC Scopus subject areas

  • Medicine(all)

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